Thank you all for the welcome. Had opportunity last night to start my own type of grassroots effort to educate about AA. At, retirement party, my niece & husband are both nurse anesthetists. She works for PM/ANES dr, he (her husband) teaches nurse anesthetists, drs, also some continuing education for professonals @ huge famous hospitals in Texas Medical Center. Its @ least 40 hospitals. So, I told them I had AA. They flipped that @ their level of education they had never heard of AA. Explained how no dr told me from 1988, when first on MRI, until 2012! That I had to learn myself everything about AA myself, and that NO doctor explained what it was even after I found out. They PROMISED they would take info back to their anesthesiology community & research AA. Inform PM/ anes dr that YES, he could get a patient like me, chronic pain patient, who has 32 grafts on dura, CUT dura to put in pain pump or SCS & he could SEVER the nerves/a nerve that served the lower body. HE COULD POTENTIALLY take the " wrap" for that patients AA! This should help to stop the PUSHING of procedures( i.e. epidural steroid injs, spinal cord stimulators & morphine pumps etc) & REAL surgeries that can HURT an AA patient! Just give us our medicine & stop pushing the money making surgeries, procedures UNTIL WE decide the symptoms are so severe that it is WORTH the risk!!! I will do whatever it takes until DRS KNOW that they can hurt is & understand the disorder called AA & first do no harm! Thank you for hearing this rant! gmak