Hi Kev, thanks for your reply!
Wish I could tolerate Baclofen, unfortunately had bad dizziness and visual problems so had to stop.
I asked an American pain professor for some advice and she said that I'm "mightily challenged"
LOL
Thank goodness today, my cramps have stopped after 12 days...!! It's so weird because, I get a few hours respite and then my body decides to attack again.
Take care Kev and it's great to have a place to connect with others who appreciate what this hideous illness does to us.
Helen x