Hi Doc
This shooting pain I get can happen any time resting or moving. In fact I would say it happens more when I am resting or sitting. It doesn't follow a pattern I can identify. The girls just laugh and say 'attention seeking behaviour' when I go Whoa S**t what was that? Trouble is when you are driving along on the motorway at 70 miles per hour, and you get a spasm like that, they get worried:ohmy:
Trouble is Doc, when you live on your own and you get these spasms and there is no-one there to see, how can that be 'attention seeking behaviour'?
It's like the good old myth that if your leg gives way - then that is 'inapprobriate behaviour' because there is no physiological reason for it to happen! But Doc it happens!
Prof Porter had it happen to him and he did not have an explanation, but no-one says he has a psychosocial illness.
We need an understanding and an explanation. We might not be able to stop it happening to us or be medicated for it, but if we could just get some recognition for what is happening to us.
Remember Itches and Twitches? That article was as a direct response to what people were saying on the helpline.
If I had a spasm when in the MRI Scan wouldn't that ruin the scan itself? Of course that would be my fault as well, wouldn't it?
Sorry Doc, there are no easy answers but I hope more questions!
Luv 'n Luk
Kim
(Nemesis)