Hi Ann
If you can pass this on to Alison if she doesn't watch the forum.
Do I need to say anymore than I have heard this story countless times over the last 10-12 years.Practically word for word. It doesn't get better or easier to have to listen too or indeed read about these problems and feeling powerless to help.
I can say things like keep faith with yourself. It is the system that is wrong not your own mind.
With regards to benefits, there is a Commissioners ruling on medical reports not substansiating claiments own symptons. I will try to dig this out over the weekend and let you quote it. A non qualified adjudicator cannot believe a medical report (or lack of one) above your statement of claim.
Point two: there is a Prof up here in Liverpool who is an expert on ME and I have had good personal reports about him. It would be possible to get an out of area referral to see him. (The money follows the patient these days) and I could help with that as well.
Point three: ASK to see a consultant psychiatrist - they can determine wether you have organic or non organic symptoms. It worked wonders last time I supported someone to do just that.
Point four: Distraction Therapy - try to find small tasks you can do when ever the pain is getting on top of you.I use to love horses and it was a riding accident which started this train of events many years ago.
You have to beat them with your own strength of mind, and there are many people who will help you do just this, not least Ann.
Failing this, just incase you don't believe me, we can get an out of area referral to see DocSarah, even if it is a bit of a hike down to Plymouth!
Sadly, no-one can take your pain away but we can give you the weapons for a better quality of life than you have right now.
Lastly and sadly you are not alone, there are thousands like you. Even Dr Charles Burton recognises the damage Kenalog can cause!
Bye for now
Kim<br><br>Post edited by: Kim, at: 2005/11/18 22:39