Hi Ginnie
DocSarah won't thank me for this reply, so please this is soley my view.
Why bother about a Doc who understand AA? They can't do anything more for you than a Doc who understand Fibromyalgia. The treatment is exactly the same for both conditions. So if you have medication for that it will be treating the AA symptoms as well!!! Why? Simply because Fibromyalgia can be said to be caused by your own body - not his fault - OK. AA on the otherhand is almost 100% Doctor induced - caused by the medical profession. You and your condition (AA) are a medical embarassment to all of them, they don't want to acknowledge the condition exists because that would fly in the face of their creed \"First do no harm\"
Now having got that of my chest: Bladder and Bowel problems. Try listening to your own body. It's what happened to me. I use to get an increased pain in my foot and would then try to use 'distraction therapy.' Getting up to do something else, I would always go to the loo first, and hey the pain would subside. Now for a long time I thought it was because of using distraction therapy but a chance chat with DocSarah years ago told me there was a physiological reason for this. A distended bladder would be pressing on the already damaged nerve. This works well during the day but come evening, there' no chance as the pain level is too high then anyway. There are operations that can help but when is was referred the specialist said only 25% success rate for bladder and could make you worse! I said I would wait until he got his numbers up! Bowel, well I did have a small operation for that and it has helped but not cured.
About seeing someone else about AA? He's right get treatment for your symptoms and reassurance elsewhere.
As for keeping positive, I always suggest you can have one day a month to feal really miserable (Ann calls them Pity days). Save them up and get yourself a whole weekend:sick:
Tired? Fatigue try:
www.theaword.org/index.php?option=com_co...00&Itemid=41
DocSarah found it a big problem herself and members.
Coping Skills:
www.theaword.org/index.php?option=com_co...75&Itemid=41
Good too. All these articles are about real people feeling pretty much how you do. Doc is doing this questionnaire to find out more and has asked if people think it is progressive. I personally don't think so - just you cope less well as you get older.
If I haven't covered everything - get back to me - I will always find you a link on the site.
Bye for now
Kim
P.S. I can't post every day but going thru' a 'purple patch' at the moment and there are things I want to change on the website - for the better:cheer: