The Aword

I wondered if anyone has problems with their toes and feet!At the moment my left foot is so swollen 24/7 and when walking it's dropping because it's so tight across the top of my ankle!The right foots the same but not quite as painful.I always have the pins and needles which is now creeping up my shin.My feet feel like they're ready to burst,even though I'm taking my Gabapentin and Tramadol the pain just won't cease.I did ask the Neuro guy about this a week ago but he didn't even look at them.I'd be really grateful for any suggestions,especially as we're going away for a few days next week and as I am at the moment I think I'll just have to use my wheelchair because walking with my feet dropping is so bad.Many thanks,Ginnie

Hi Ginnie
Sorry to read your story and the problems with your feet. I'm experiencing similar problems but with my hands! I can't offer you any advice other than hopefully someone with the same experience will offer you some answers. Sadly, even the doctors are at a loss when it comes to this illness, there are no specialists in Arachnoiditis because there is no treatment other than pain relief and support groups like this.
Communicating with other sufferers does help and I'm amazed how we all continue to put up with our unfortunate fate.
Take care, Helen

Ginnie, i also suffer terrible pains in my feet and toes but the Gabapentin helps a lot. What dosage are you on? I take 1500mg daily others take up to 3600mg if i remember correctly so it could be upping your dose may help and it takes weeks to achieve full effect.